Rachelle Vartanian: From Special Education Teacher to CommunityLeader
Empowering Adults with Special Needs: One Woman’s Journey
In this episode, we hear an inspiring story of a former special education teacher who founded a nonprofit organization dedicated to supporting adults with special needs.
Initially serving individuals with autism, the organization's services have expanded to anyone needing support, regardless of diagnosis.
From starting with one program in a small library, the nonprofit now runs over 30 programs across nine counties and 87 cities, helping around 300 people weekly.
The founder shares her personal journey, the challenges she faced, and her relentless pursuit to provide a safe and nurturing environment for her son and others like him.
The organization now offers a wide range of vocational, social, and therapeutic programs, aiming for independent living for its members.
The story highlights the power of community support, passion, and the significance of creating inclusive spaces for individuals with special needs.
Mission
Personal Journey and Motivation
Starting the Nonprofit
Expanding Programs and Services
Challenges and Milestones
Vision for Independent Living
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The content on Why Not Me: Embracing Autism amd Mental Health Worldwide, including discussions on mental health, autism, and related topics, is provided for informational and entertainment purposes only.
The views and opinions expressed by guests are their own and do not reflect those of the podcast, its hosts, or affiliates.
Why Not Me is not a medical or mental health professional and does not endorse or verify the accuracy, efficacy, safety of any treatments, programs, or advice discussed.
Listeners should consult qualified healthcare professionals, such as licensed therapists, psychologists, or physicians, before making decisions about mental health or autism- related care.
Reliance on this podcast's contents is at the listener's own risk.
Why Not Me is not liable for any outcomes, financial or otherwise, resulting from actions taken based on the information provided.
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Welcome to Why Not Me Embracing Autism and Mental Health Worldwide? Hosted by Tony Mantor, broadcasting from the heart of Music City, USA, Nashville, Tennessee. Join us as our guests share their raw, powerful stories. Some will spark laughter, others will move you to tears. These real life journeys inspire, connect and remind you that you're never alone. We're igniting a global movement to empower everyone to make a lasting difference by fostering deep awareness, unwavering acceptance, and profound understanding of autism and mental health. Tune in, be inspired, and join us in transforming the world one story at a time. Hi, I'm Toni Mantur. Welcome to Why Not May Embracing Autism and Mental Health Worldwide. Joining us today is Rochelle Bartannian. She is a visionary founder and president of the Living and Learning Enrichment Center, a Michigan based nonprofit dedicated to empowering teens and adults with autism and other developmental disabilities. Inspired by her son's autism diagnosis and the lack of social and vocational opportunities available to him, she founded the center in twenty fifteen to provide innovative programs that foster independence, social skills, and meaningful employment. Under her leadership, the organization has grown from a small library meeting room to a twelve acre campus, offering over thirty programs and impacting hundreds of lives across Michigan. She is a respected ADA advocate and a beacon of hope for families navigating neurodiversity. It's a pleasure to have her on. So before we dive into our episode, we'll be back with an uninterrupted show right after a word from our sponsors. Thanks for coming on. Well, thank you. Oh it's my pleasure. So if you would tell us a little bit about yourself and how you got started. So, I having no profit, and we work specifically with adults that have special needs. We started with autism and now it's really anyone. I mean, you could have an exact You don't even have to have a diagnosis. If you just need some support, you're more than welcome to come. I started with one program and we've got over thirty different programs and we see about three hundred people a week now from nine from nine different counties and eighty seven different cities. They're coming to our programs. Wow. That's great, and that's in Michigan. Correct, Yes, what part of Michigan are you in? Right on the border. It's literally between Northville and novayh Michigan. Oh okay, yeah, I understand when you first started this it. Was kind of a big leap for you. Yeah. So prior to this, I had been a special education teacher for twenty years, but I worked with kids that had severe behavioral issues. So right out of college, I worked at a lockup center for adjudicated youth and I did that for ten years. I loved it. I mean, for whatever reason, that was my passion. I went back, I got up master's and ed p Syke, and I really wanted to focus on helping women prisoners reunite with their kids, but got another plant from me. My youngest son was diagnosed with what was then called Asperger syndrome with the form of autism, and I had at that point what was going on is I was moved to a high school but with kids with severe behavioral issues, and if they didn't make it in my room, they would go to jail hospital day treatment. And they didn't know what to do with the kids with high functioning autism, so they were putting them in my room, and it was so inappropriate. Our kids are walking targets be bullied, and now they're in a classroom with kids with severe behavioral issues. So what was going through my mind is my son's never going to make it the he'll know ever survived this. So I went back to school again. I got a second master's in autism because I kept thinking, you know, I need to do something I don't know. How to do. So it gave me a little bit of confidence, and I felt like if I could know everything I can about autism, you know, it would only help me. So I got the degree, and then I started running social skill programs in a library. Every Sunday, I would rent the Farmington Public Library a room and I would have these It was pretty much friendship classes because a lot of our kids, you know, have trouble making funts, so it was just helping them connect with each other in great friendships. And I did it for about two years and then I just thought to myself, one day, well it really wasn't one day. I'd been thinking about it a lot that if I don't do something Jurassic, my son is going to be like every student I've ever worked with who I'm talking to them when they get out of school and talking to their parents, and they're saying to me that they're living in the basement playing video games and they don't know what to do. There's no hope. The other part for me was that I just got divorce and I don't really have family, and I kept thinking, if I die, this kid's gonna be home homeless. So I took a huge leap of faith and I quit my job. I sold my home. I had a beautiful home my ex husband I had built and I sold it and I moved us into a home that was very humble. When we moved out of a year later, they bulldozed it down. That's how bad it was. But it allowed me to open the doors a living and learning. And now actually we're celebrated our ten year anniversary. We have one hundred and sixty two people that work for us. Now. I mean, it's crazy what happened. Yeah, that's great. So when you first started, you always have plans. Did it wind up growing faster than what you thought or did it take a little while to develop to get where you are today? Yeah? It never goes as fast for me as I needed too. To be totally honest, my goal the whole time was independent living, you know, and I didn't know how I was going to get there. I didn't know what it was going to look like, but I knew I just had to start. So I started with a program and I called it Friday Night Hangout, where every single Friday you could come here and for three hours and you know, we were again. It was kind of like what I did in the library, creating friendships. We'd order pizza and you know, karaoke and video games and just trying to help them connect with each other. And it grew, and then I added a Saturday and I hang out, and you know, then I started, you know a lot of special interests. So I did, like gamers Club and dungeons and dragon clubs, just start adding all these clubs to it. So adding the club did it grow from the are What happened was. I started looking at all of them, and I started thinking none of them were working, and whatever this looks like for me to create for independent living, I have to help them work. So I started creating. At that point, it was just me working. I had no money hire anyone, so I'm taking you know, small groups to different businesses and doing vocational skill building with them. And then I was able to hire someone. So that gets bigger and we outgrew the little storefront we were at. We moved to another location it was a little bit bigger, and it was within three months. It was like the world heard about us and people were coming from everywhere to these programs. So I was in the same position where I have to move again. You know, we can't hold all these people. You know, I wasn't getting a paycheck and Northville, Nova area is very expensive, so I didn't know what I was going to do. That's a good situation to be in, but yet a bad situation. So what happened next. I was in a meeting one day and this man said, you guys should buy the Don Massey estate that's down the street if you're from this area, like it's an iconic piece of property. And it was up for sale for three and a half million dollars and the prior owner was Don Massey and he was the Cadillac King. He owned Moore Kellic dealerships than anyone in the world. Joe Lewis had lived in this house for a short period of time, and you know, we laughed. But one day I was just driving by the property and I thought, I'm just going to call the realtor and see if I can walk that property. So now I have two employees and I told them to come with me. But I got there before anyone else, and I was standing on the porch waiting for my two employees and the realtor, and I just I had this moment where I was looking across the street. You know, the sun shining. It's fall, so I can see there's no leaves on the trees. I can see across the street and I'm standing there and I'm seeing these apartments across the street. I drove by those apartments a million times, but for whatever reason, at that moment, I just had this feeling that this is how you're going to do it. You're going to help people live there, and this is going to be home base. And as we were walking the property with the reel stair, I could picture every micro business we had ever discussed. So when we got done, I said, I'm in and I just kind of did what I'm doing now. I told my story to anyone that would listen. I went to. Quantus club, rotary clubs, you know, churches, you know, anyone that would hear me. Wow, that seems like a really great plan. So as things moved along, how did it all develop and fall together? For you? Northfield has a little magazine, so they did a little story on me, and then I took it and I went to every news station I could, and finally a local news station did a little peace on it, and someone saw it. They were in the hospital, they were really sick, and he told his assistant, I can't remember this woman's name, but she sold her home to make this happen, and she has a pumath autism. And the assistant found me and I met him, and I just kept emailing and texting and calling, you know, just keeping in touch. And about a year later, he started getting healthier, and I asked him if he'd walked the proper with me. I have to admit, in my head, I was like, you've got one chot here, and I was trying to sell it, and so pointing across the street these apartments and why and you know, I'm over here, I'm going to have I'll packas chickens, I'm gonna have a bee farm, I'm explaining everything, and we got halfway through and he said, this has to happen. He said, I'm going to give your first half million dollars. But I'm a businessman. He goes, I'm not paying for the whole thing. You have to have skin in the game, so you have to raise the rest. He goes, I know you're going to make this happen because of what you sacrificed. So it took me another year to raise the rest of it for the DOB payment, and we got the keys January twenty twenty and so now it's five years later, though it's been a really crazy journey. Wow, that's great. Just shows you never know, have to put one foot in front of the other and see what happens. Exactly. Now, five years later, how many employees. I think we've broke up to one hundred and sixty two. And the reason is it's not a lot of overhead. The reason is every time three more people come to us, we just say, members, I have to hire someone, because really the ratio is about one to three. I mean, I'm sure it could be one to five, but we're really careful. So yeah, and we've got I think it's five satellites right now, we have a soap factory. We have a little store. It's an artisan market and we sell people's work that have special needs, or if you don't have special needs, you can sell your work there. And then we have down the street where we do our ABA and psyco therapy. So we just really have expanded. Yeah, that's just so good. You're helping so many different people. Now, it sounds like you focus on autism, yet you allow others to come in as well, which is great. So what does a typical day look like at your establishment? You're just you know, having some trouble, you know, maybe you're having anxiety or something. I mean, we welcome everyone. I'm not asking for diagnosis or anything like that. Just come. But I'd say now fifty percent have autism. The other half have I don't know, maybe down syndrome or serubra palsy or ADHD. So a typical day Monday through Fridays and this is this is super cool. You know that little vocational program I started. Now we've got a program for the most independent where we've got over two hundred people paying jobs. And then if you need a little bit more support, we've got our vocational program where we have gosh, probably one hundred and fifty business partners in the community. So Monday through Friday, these young adults come to us and it's one job coach three to four of the members. They go to these different job sites and the goal is for them to find the job they love and then move into job development where we get you a paying job. Wow, that's great, and that's what I call real progress. But to be completely honest, ninety percent probably stay there and I just whatever they want and what the parent wants. I respect. You know, a lot of it is well, if I get a paying job, I'm kicked off Social Security. So whatever works for you. So we've got that and that is our biggest program. And then if you need more support, we've got something called Foundations Vocational Foundations where you're at our campus half the day and you know, we've got utpack us and chickens and bunnies and bees and vegetable gardens, so you're doing that and the other half the day you're. Out in the community. And then we have one if you need even more support, more one on one support where we have a guesthouse and they're cooking in there and learning to watches, learning to do skills that will help them be as independent as possible. They're still in the community twice a day, but for really short periods of time. That's during the day. We also have cooking classes going on during the day. You know, like I said, we've got our artists in market that's going on during the day. We've got our aba and psycle therapy going on, the soap factories that all that's going on. And then in the evenings we've got it could be you know, art classes are going on, dungeons and dragon classes. We've got twenty groups, you know where it's twenty in older groups. So we just have all these social programs in the evenings. Wow, that's a tremendous amount of things. What age groups are there? My focus has always been towards adults, and I would say probably the majority of people are in their twenties or thirties. We have people that have senior citizens that are in there. And I've got one program I call it the Zone, and it really is what I was doing in the library, you know, with that young group, I just couldn't get rid of it. With such a special group. So I still have that program. I would say it's people that are in middle. School with all the activities, all the diverse people you have there. What are some of the challenges you face? Along with that comes a diverse range of needs. So what challenges do you face? And then how do you tackle it and move forward? I hate saying this, but I feel like it's always money. I feel like, you know, I want to do something, well, you're going to have get money. And I feel like I keep saying to my people like there's nothing else I can sell. You know, I've got nothing else I can sell. Now, you know, we always get through it. Once you get to I think it's one hundred employees, you have to start paying health insurance. Well, okay, now I'm paying health insurance, which needed to happen. I support it, but it costs money to do that. And then there's less money going towards programs. And that's always an issue, always trying to find funding. And then employees. I've got. The employees I have are amazing and they're so passionate, but I've got a waiting list of I think it's almost a two year waiting list for my vocational program, and I can't get people off that unless I can hire people, so that would be the other issue. Money seems to be always an issue. So if money is the issue, like you're saying, how do you address that? What do you do to correct it? So for me, what I do is I go to everything I can. Anyone wants to meet, I bring them out. I probably work more at night than I work any other time because I'm just constantly trying to meet people, introduce them to what we're doing. And I never ask people for money. What I do is I'll say, you know, if you know anyone that you feel would want to support us, So that's how I do it. No, we get grants and everything, but the most money I've ever been able to bring in it's always been from one individual who wants to support us. So that's pretty much what I do. Yeah, I totally get that. Now, what are your goals? What do you see on the horizon in the next three to five years independent living? So there's apartments for sale, maybe a mile from the center, and it doesn't have to be those apartments, but that's my focus right now is buying these apartments and anyone can live there. The key is this ninety percent of my people don't drive. I've gone to different places where people have done some sort of independent living, and I appreciate everything everyone is. You know, I look at it and go, oh my god, that's great. But it seems like most people will go, Okay, we're going to get a farm, we're going to get land. But the thing is then they're isolated. You've got to be in a place where they can walk to things. Otherwise they're not doing anything. So this apartment is walkable to everything. And that's a great thing about where we're at too. We're in the heart of the city, but we're on this little island, so you know, we're really safe. But they can walk to everything. So that's why I want it. But my vision is anyone can live there, so it's inclusive. But if you have any type of need, or you're senior citizen, because our people will be senior citizens at some point, we'll give you the support you need. And then you know, we do ABA and psychotherapy. So I would move that staff there. And I'm just making this up, but let's say you're having an issue I don't know, putting dishes in the dishwasher that my person would go there and help you master it in your own place so that you can be as independent as possible. Right, Yeah, that's great. Now, some autistic people are well known for them meldowns. Yes, yeah, So how do you handle that? I mean, I've talked with some ABA therapists that go to the home and sometimes they feel like they have to leave because it might not be a safe environment because of the meltdowns. Yeah. How do you go. About vetting anyone that you might work with or have an ABA work with. You mean, checking whether they could come to living learning or not like their behavior or. Yeah that, or if you wanted to send somebody out to the home to help them. Okay, So this is where I fee. It's just funny looking back at my life and going, well, maybe this is why this happened. You know, I worked with kids that had severe behavioral. Issues for eighteen years of my teaching career, and I can really gauge. I'm a good gauge at that. But if you have an emotional issue or defiance, I wish you luck and I'm going to help you find someone. But this isn't the place for you. Because my promise is to the people that come there that you're going to be safe. We still occasionally have, you know, behavioral issues. We had one today. When it happens, you know, of course, we try to de escalate and make sure everyone and saye. We typically will say to the individual, you need to take a break. I'm not going to kick you out, but you need to take a break. And whether you go to your own doctor or you know, our therapist, but you need to get to a place where that person is signing off saying you know what, They're in a good place and they're ready to come back. So that's pretty much how I've done it. And right now I don't have any of my therapists going to people's homes. What I was saying is when we get those apartments, though, I would have to go into their apartments. Okay, yeah, that totally makes sense. Now, you have so many things going on, how do you break it down so there's no issues. You have so many moving parts, and anytime you have that many things going on, something happens. So how do you keep it going smooth? Well? I hire amazing people, people that you know want to be there. We have a lot of retired teachers, We have a lot of people now that are working for us that are therapists, or they are ABA therapists, and maybe they're just job coaches. They've decided that, you know, that's more of their passion. But we put a lot of layers in place too, so it's not just oh, you're going to the job site with your job coach. I've got people overseeing them, supporting them. You know, is there anything that you need? Is there an issue that we can help you with? And then I've got people supporting them. So I think that's it. I hope I answered your question. Yeah, I think you covered it pretty well. Now do you have anyone that comes in that looks over what you do? Yeah, people that are from the county or the state or the city that just make sure that everything's going the way it should be going. Yeah. So with all that red tape, what does that. Entail well to get? You know, and I'm that parent too, I mean I come remember taking a loan out once to pay for my son's services. So this stuff is expensive. So what I did, it took a while, and they don't make it easy, is I went to Oakland County, which is where a lot of our members come from, and then I went to Wayne County and was able to get a contract with them so that these services are paid for for the families that live in those counties. But when you do that, you put yourself in a position where it's fine. Where they do. They get to double check on everything and you know, audit you which I welcome it. So, yeah, I do have to do that. They come in, I think once a year they come in, but they're always checking on things and auditing offs and it's all good. I welcome it. Yeah that's great. Now you mentioned your son. How old is he now? He's twenty four now, so does he attend there as well? So this is this is the dichotomy of this whole thing. I did all this right because I was so worried about my own kid, and he wants nothing to do with it. He's like, I joke all the time that he's the autistic snob. He's like, yeah, it's great for those people. I don't need it, you know, he's that group of population. I respect it completely that he doesn't want really. I mean, he'll sometimes tell people, but he doesn't want people to know. He feels like when people know, they treat him differently. So you know, I get it. Yeah, I get it as well. I spoke with a guy from London. He's autistic, big guy. I probably weighs on a two hundred and fifteen pounds, in good shape. He says, you know, I can tell someone I'm autistic and they'll always question it. But if I tell him that I have cancer, they're going to say, oh, how can I help you? Yeah, And my son says the same thing. And my son is like six' two and he's almost two hundred. Pounds he's a big. Guy that just happened to something similar just happened to. Me my. Son my next neighbor is like he is an avid gun. SHOOTER i mean he goes to the gun. CLUBS i mean he's very, responsible nothing like, that you. Know but my son said to, HIM i would love to, learn you, know would you take me to the gun range and teach. Me he was very excited the. Neighbor but then his wife later, said has killed. Me she, said you know, WHAT i don't think it's a good. Idea you. Know you know what happened With, columbine another shooting that was here In. MICHIGAN i just, went, oh my, God like he's being. Stereotyped you, know it just killed, me but, yeah you, know it. Happens, yeah, unfortunately there's a certain perception that comes along with Auto it's. Unfortunate but until people get better understanding about, it, yeah it's going to. Continue it's getting, better yet we still have a long way to. GO i think it's getting better, too AND i think we have a long way to go. Too that was always another THOUGHT i had BECAUSE i was in the heart of the. City you, know we're out and about. Everywhere we've got jobs, downtown AND i kept thinking to, myself maybe not this, generation but the next, generation it's going to be so much easier for people to accept this because they're around. It, yeah that's all we can hope because if you look at the, sixties the, seventies, eighties and even the, nineties autism was not talked about in most. Part it really wasn't even thought. About, no let alone have conversations like. This. No i've spoken with several people that have been diagnosed autistic in their thirties, forties being diagnosed later in. Life they would look at it and, say you, know now that we're looking, back there was probably a lot of people that they grew up with that were. Autistic, now they, say being diagnosed later in, life they look back and they're having a great life and they have a better understanding of what's going. On so are you saying that those, people once they found out it was kind of, like oh my, god that's why. Exactly OH i get, it. Okay. Yeah they would make references of having quirky people around them while they were growing up in their, schools and now that they've been, diagnosed they understand autism. More they realized they were dealing with autistic people at that point but didn't realize. It. Yeah a lot of times when we do, intakes you, know so if you want to come to our, center it's an interview. Basically you, know we're doing it And i'm looking at the Dead i'm thinking you have autism, too you. Know. Yeah. Yeah i've spoken with several that have found out later in life they were autistic only because they found out their kids. Were, yeah so we know it's a genetic, then you. Know, YES i believe it definitely can. BE i had a lady that had an autistic, child and she was beating herself up with guilt because DID. I do anything, Wrong what DID i? Do and all the. Unknown, yeah then when she became pregnant, again she really watched her. Diet she did everything by the, book and then the child was, born no, vaccinations just took every precaution she. Could, ultimately the second child turned out to be autistic as. Well, Right ultimately it didn't. Matter, Yeah i've heard those stories before. Too, yeah you, KNOW i was a special education. TEACHER i think at that point i'd been teaching eight years when he was. Diagnosed i'd never heard the word asperger. SYNDROME i didn't know what it. Was and this is kind of interesting. Too now with THE, dsm they don't Have, asperger's everything's. Autism my son hates. It he feels That asperger's describes some. Better that's. Interesting most of the people That i've spoken with prefer the spectrum because that way they can dictate what level they're, on so people can understand they're like everybody. Else it's just they're. Autistic that's the thing about this whole, thing, too is that you, KNOW i was telling you about the job skills Training i've got for you, know because it is such a spectrum for people that the most support all the way to people have master's, DEGREES i, mean trying to service all of them doing a good. Job but people like my, son like he doesn't want to be with people that need more, support you, Know AND i respect that. Too. Yeah. Absolutely also the fact that you're helping people find, jobs and that's a huge thing in the autistic. Community. YEAH i think it's above eighty percent that are either unemployed or. Underemployed, WELL i remember when we first started doing, it it was ninety percent unemployment right for adults with. Autism SO i don't know what it is, now but you're, RIGHT i think it's about the same eighty to. Ninety we did have an academy and It. Academy we had it for five years and it was. Exceptional we partnered With Cisco. Networking WHAT i did is they had a program it was six, months and then we just stretched it, out slowed it. Down they were getting the same. CERTIFICATE i mean they had to take the. TASK i want to, say like a ton of. All we got jobs for them Like Co, America Ford Motor, COMPANY i mean great, jobs BUT i could never justify it to my board because not enough of them we're getting. Employed, yeah And another thing an employee has to take into account is once they find an autistic individual that fits the, bill that person is, very very. Loyal. Yeah so that's one of the things we do, too is, that you, Know i've said that we have over two hundred people that we have gotten paying jobs. For we do a really good job educating the employer and go Back it's not just, Like, okay we gotten the job by as much as we need. To we'll go back in there and how's it, going you, know asking the employer and the. Employee and it's. Funny a lot of times the, employee the person with, autism thinks everything's, fine and player's, like, yeah it's, good except you, know maybe this one little. Thing so we still. Hope. Yeah i've talked with several people that have a company to help autistic people find work and then work with the employer to make sure that they can figure out what they need to, do because so many employers think to hire autistic people they have to spend thousands and thousands of dollars and it's not so. RIGHT i Had Temple grandon on talking about. Jobs she, said just give me a pilot checklist of WHAT i have to do AND i can do it. Right the other thing we see is that they're afraid that if they have to let them, go there's a. Lawsuit so that's the other thing we. Hear, yeah, YEAH i can see that. Right so in, closing what would you like to tell the listeners that you think is important that they hear from the knowledge that you've gained from your journey within the autistic. Community, WELL i know a lot of parents want to do. Something you, know it's you, know every PERIOD i talk to is one specific. Thing you, KNOW i, want you, know, whatever dating or jobs or AND i guess What i'm, saying whether it's to the person that's receiving services or to the, parent just do. It there's never going to be a good. Time it's never going to be well next, Year i'll make this much. Money if you really want to do, it just do, it because it's not going to happen if you don't and time goes by and you're going to be sitting there and, like well now it's too late to do. Something, yeah that totally makes. Sense, well this has been, great great, conversation great. INFORMATION i really appreciate you taking the. Time to come. On thank. You for having me. On it's been my. Pleasure thanks. Again thanks for taking time out of your busy schedule to listen to our show. Today we hope you enjoyed it as much as we enjoyed bringing it to. You if you know someone who has a story to, share tell them to contact us at WHY Notomt. World one last, thing spread the word about Why Not, me our, conversations our inspiring, guests the. Show you are not alone in this. World