Gabriella Russo: Embracing Self-Discovery and Advocacy in Autism – Overcoming Challenges and Building a Supportive Community
What if discovering your true self could transform your entire life journey?
Join me, Tony Mantor, as I sit down with the insightful Gabriella Russo for a powerful discussion on self-discovery and acceptance within the autistic community.
Gabriella shares her personal narrative, revealing how her godchild's involvement with an autism support group prompted her own recognition of being autistic. Through her candid reflections, she recounts overcoming challenges like an abusive marriage and workplace bullying, ultimately embracing her identity and finding solace in self-diagnosis and community support.
Gabriella's story is a testament to the profound impact of understanding one's unique identity, especially when faced with a late autism diagnosis.
Together, Gabriella and I explore the broader landscape of neurodiversity and the importance of advocacy.
We delve into the significance of self-diagnosis, the therapeutic journey to self-acceptance, and the often challenging path autistic individuals face in professional settings.
Discover how self-employment can serve as a refuge, harnessing personal strengths while avoiding burnout.
Our conversation also highlights the critical need for comprehensive training in safeguarding, mental health, and neurodiversity to genuinely support neurodivergent individuals across their lifespan, addressing both their vulnerabilities and their strengths.
Finally, we touch on the complexities surrounding autism diagnoses later in life, particularly for women and people of color.
Gabriella underscores the personal empowerment found in connecting with others who share similar experiences and stresses the importance of therapy and self-acceptance.
As we wrap up, Gabriella shares how she engages with her audience through various platforms, emphasizing advocacy for the autistic community.
We encourage listeners with compelling stories to reach out and perhaps join future episodes, fostering a space for support and continued advocacy.
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The content on Why Not Me: Embracing Autism amd Mental Health Worldwide, including discussions on mental health, autism, and related topics, is provided for informational and entertainment purposes only.
The views and opinions expressed by guests are their own and do not reflect those of the podcast, its hosts, or affiliates.
Why Not Me is not a medical or mental health professional and does not endorse or verify the accuracy, efficacy, safety of any treatments, programs, or advice discussed.
Listeners should consult qualified healthcare professionals, such as licensed therapists, psychologists, or physicians, before making decisions about mental health or autism- related care.
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Why Not Me is not liable for any outcomes, financial or otherwise, resulting from actions taken based on the information provided.
https://tonymantor.com
https://Facebook.com/tonymantor
https://instagram.com/tonymantor
https://twitter.com/tonymantor
https://youtube.com/tonymantormusic
intro/outro music bed written by T. Wild
Why Not Me the World music published by Mantor Music (BMI)
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Welcome to Why Not Me the World? Podcast, hosted by Tony Mantor, broadcasting from Music City USA, Nashville, Tennessee. Join us as our guests tell us their stories. Some will make you laugh, some will make you cry. Real life people who will inspire and show that you are not alone in this world. Hopefully you gain more awareness, acceptance, and a better understanding for autism around the world. Hi, I'm Tony Mantor. Welcome to Why Not Me the World? Today we are joined by Gabriella Russo, an expert with twenty five years of experience in supporting organizations that cater to children, young people and families in the UK and internationally. Her work has taken to the primary and secondary schools, colleges and universities, where she helps ensure their safeguarding measures are up to date. Gabriella is passionate about creating a workplace culture that is inclusive, empathetic and compassionate. We're excited to share her inspiring story. Thanks for coming on. Oh, I really appreciate the opportunity. Thank you so much. Oh, it's my pleasure. How did you get involved with the artistic community? So my godchild is autistic? When she was when I'm sorry, they've just identified as non binary and I'm still learning the language. When they were much much smaller. Their mum belonged to an autistic support group for families of autistic children, and she asked me to come along so I could get to know things and kind of learn things that will be useful for my relationship with my godchild. So I started going, and then I started being like, hang on, this is feeling a bit like it's describing me, and this sounds familiar. And basically, through that community came to a recognition of my own autism. That was about nine nine years ago now, and so I've stayed in that community since, and that was really where where the journey started for me. Was actually that point, And when I turn around to my friend, I was like, I think this might be me. She was like, no, really, I kind of think you might be right. And everyone in the group was like, yeah, you're definitely autistic. Why are you even questioning this? Did you get a formal diagnosis of autism? It's been a long journey for me, actually, So I've got to be honest that initially, when I started to recognize it really freaked me out. I was just learning about it myself. I've got a good history and some really traumatic things in my history. I was in an abusive marriage, in a high control church, things like that, and I think when I first started to a record andize it, the things that were going through my head were those people, my abusive husband, those people were telling about how they go. We always thought she was a bit crazy. We were actually right in how we treated her, so it played into that for me. Took me quite a long time to really kind of go through that process of accepting it. I was also struggling at work, and as I start to work through it, I tried to be honest in my place of work, and basically what happened there was I ended up being bullied out by my manager. They sort of she came in with a bit of an agenda to get rid of me anyway. She was a new manager and started shooting me really badly, doing all the things you don't do for someone who to autistic in the workplace, like micro managing, setting up with difficult tasks, doing the sorts of things that really sort of set a lot of panic in for me, and I started having panic attacks that I now recognized were kind of panic attack, stroke, meltdown type situations, and I ended up happening to walk away from that job, and so I was then recovering from that, and so I am now in the process of being diagnosed, which takes a long time here in the UK unless you've got the funds to pay for something private. I have a therapist who recognizes all of that I have doing those kinds of things. So whilst I'm not officially medically diagnosed, I'm definitely autistic that you know, I'm in those communities, I'm surrounded, I've got a coach. I'm with all of those people and we're working it through and I'm waiting for the official diagnosis to happen. With everything that happened to you, finding that you're artistic, just the way that you did, the way that things seem to make sense with your husband and the people around you, How did that affect you with your family and your interaction on a day to day basis. Did that change things for you? What happened after that? I think it's a really interesting situation with your late diagnosed. When I say diagnosed, I count self diagnosis because it is quite a difficult thing to get your full diagnosis medically. The later you're diagnosed in lots of respects, the more unpicking of of what's happened in your life up till then kind of needs to take place if that's what you want to do, right. So I've been doing that and it's helped me to recognize why I felt certain ways in different situations, why I struggled with my friendships at school, why I often just felt like I was somehow different. I was too much. I went very deep, very quickly with friendships. They meant a lot more. I got more, hurt, more easily, and I struggled with those different things. It's not to say I didn't have friends, but you know, things weren't always easy. I was bullied throughout my primary school education, which is four to eleven. Second of school wasn't quite so bad. I did struggle at university. I mean I got through all of those things, Like my education was fine in one sense, but I definitely struggled at university. And so what it's done is, as I've looked back, rather than kind of saying I was rubbish at that, I wasn't organized enough. I was the person who struggled with friendships that makes me less than I've kind of gone, okay, that's why, and I'm different, not broken. So it's gradually I'm picking those messages to myself and kind of what the world makes you feel about yourself. That's a great way of looking at things. You've been able to reflect on your past, diagnose yourself a little bit in things that happened so that you could kind of make sense of them with this all going on in your life and you come into grips with everything that you need to. This has really helped your overall outlook on moving forward. I think that's a great thing. Yeah, absolutely, And it's two things. It's not just changing things, so it's actually going through self acceptance. So I'm not changing who I am. I'm building my life in a way that works for me, which we're not always afforded the opportunity to do that. The world is set up in a way that it's difficult to do that. Work can be a difficult place to do that. And so I am gradually messily learning and changing how I live my life, what is accept to me as well as the things I need to be aware of in terms of how I impact other people as well. Sure, I've had the opportunity to speak with many people that have been late diagnosed. The greater percentage of those being late diagnosed were females. Yep. The reason they've told me is they tend to mask more to fit in. Yep. So, once you came to the conclusion that you are autistic, did you get a chance to look at yourself as an outsider looking at you where you could reflect on things that you did, look at how you handled those things. And once you looked at yourself, did a deeper dive on some of the issues that you was having. Did you find that you was masking as well? Oh? One, absolutely definitely impact In part of the therapeutic journey has been trying to find who I really am rather than who I've built myself to be to fit in. But yeah, oh completely, I can see that. I mean, I used to even when I was a teenager and even a little bit younger than that, I used to be aware that I would be different depending on the people I was around. I didn't understand why I was. It was more like I'm afraid to kind of state my preferences in case they get rejected. And now I can see that that's masking, whereas before it was like, I'm just not confident enough. I need some help with my confidence. Yeah, that makes sense. By doing this self diagnosis while you're working with a therapist to get your diagnosis, have you found that this might have put you in a better place, more of your comfort zone, because you can accept what happened except what's going on now, so that you can use that to better move forward with your future. Yeah, I mean I'm getting there. Some things I'm still working through, but no, absolutely, I think I like myself a lot more. I'm able to recognize that people's opinions of me are their opinions of me rather than the truth of me. I was very much people pleasing, trying to keep the peace, trying to fit in, which set me up for some difficult friendships and probably set me up for, you know, some of the more traumatic things I've gone through, not in a victim blaming way, but in you have to recognize your own stuff as well. And now I'm a little bit kind of less accepting of people wanting me to be what fits them without it being like I just know who I am and everyone can get lost because I'm wonderful. I'm not saying that, but there's kind of an equality to it that there didn't used to be. Sure, Sure, what are some of the things that you still struggle with. You may be still working on it, trying to fix it so that you can still accept who you are. Yeah, you may be s ruggling on some things just because the way the world is in its perception of artistic people. I certainly think that the workplace is an incredibly difficult place to be. I'm self employed now, so that's it. It wasn't a decision that was initially made just because I struggled with my job. At that point, I was still like that these things are happening. I was treated really badly the organization I was working with. A lot of other people were treated badly there as well. You discover that when you leave. But in the process of coming out of that job, I was headhunted essentially to deliver training, and now I'm a full time consultant trainer. It kind of happened organically in a way. As I've done that, I've begun to recognize that I operate much better in those spaces rather than the confines of nine to five. You've got to be in the office. You've got to I mean, I've never really had jobs that are absolutely like ninety five in the office. I've done youth work and some of those kinds of jobs. I worked aunt Uman trafficking for a while, so I was delving training. Working victims are quite a varied kind of job, which I'm now discovering my ADHD as well, and that kind of plays into that a little bit too. But regardless, I still find that self employment, whilst it has its real difficulties, allows me to work with my energy better. So I'm not going into another cycle of autistic burnout, which I now realize that's what that has been over my life. I can work in the areas that light me up and make the best of my gifts and talents, and I'm actually bringing more of the best of me to something rather than being pigeonholed and just not fitting in in terms of the work. Yeah, I mean that makes total sense. So with all this happening, everything that you went through, this has really turned you to an advocate and really helped your overall business prospects in what you're doing. Yeah. So I started off because my whole background is in sort of safeguarding and working a special educational needs children, done a whole bunch of that staff, working with children, young people, working with children, young people going through abuse, going through various traumas, and then I moved into into human trafficking, so I was dealing with that side of things as well, and then working more directly in schools running anti abuse programs was the job that I was in. When I left that job, I poured all that together and started delivering safeguarding training and consultancy. And as I've learned more about my newer diversity I've expanded that to newerdiversity training. What I'm now working on is the kind of the crossover between safeguarding and neurodiversity, because what I've seen happen so much in my own career and you know, work with children, young people and so on, is when we get safeguarding training. Say, if you're a teacher, somebody who works with children, young people, or vulnerable adults or all of those things, you get your safeguarding training, and these are the extra vulnerabilities that special educational needs children have, right, so you're more aware of those things. And then they turn eighteen and it seems like people assume that they've grown out of it. Yeah, yeah, right, we carry we. Have to, well, I own I'm not saying anyone else has to, but it's helpful to own that. Alongside on neuidiversity, there are gifts, there are talents. There are things that make me who I am, that make me brilliant at the work that I do. But I do have vulnerabilities that might be different to a neurotypical person, and those things aren't always recognized. But when you look at stats and things like that, the percentage of autistic women who experience sexual abuses way higher than neurotypical. Is kind of falling into abusive relationships because you're trying to people please, you're masking all of those things, and so there is a huge intersection. And so what it's now doing for me is bringing those two things together is helping me to kind of maybe work in a slightly different way, slightly different space to people who work in sort of the neudivergent space or people who work in safeguarding anetizing with mental health, and it's like you need to have all three together. So I'm now working in that space. What are some of the challenges that you face. One of the things that I find in tyking with people for the last year and a half to two years is artistic people, those with mental health ADHD, BiPOL or schizophrenia, et cetera. The biggest issue I've found is trying to get the neurotypical world to understand what they are going through. As much as it's needed for people to understand, there has to be those that are willing to teach them so they can understand and hopefully that'll make it better for everyone. What are some of the things that you've run into trying to do this. I think there are a lot of assumption, assumptions made about your audiversity. There's an awful lot now about oh my gosh, everyone's got autism, where everyone's got ADHD. Nowadays it's a trend and it's like, no, just the same as any other research. We've learned more, you know, we discovered and I'm not comparing your adversity to illnesses, but we know a lot more about illnesses. You know, people used to die of illnesses and we didn't know what they were at all, and now there's cures. Now, there's all sorts of things now. I'm definitely not saying there's cures for autism. I'm not talking about that at all. What I'm saying is there is scientific and psychological growth that means we're recognizing things more. That lays alongside the fact that the world is faster, moving higher expectation. You know, it's very different, and so it's bringing out some of the complexities that people experience, as in, you're a divergent person because of the way the world is going, you line up bringing some of those things out more along with more understanding, and you get an increasing diagnosis. So people miss that they think it's a trend. In the UK last week we had a politician talking about the economic advantage of being autistic, which is you can imagine work down like a lead balloon and there is this kind of kind of says, oh, you just want those labels so that you can get extra things, and it's like there is no economic advantage. Is one heck of a lot of economic disadvantages. And even with like self diagnosis, when people have done that, they've generally researched, gone through things, gradually worked things out, gradually figured out if someone safe to kind of explore that. I mean even two years ago, I wouldn't have come on a podcast to talk about my autistic experience because I was still working it out. I would deliver it in my I would talk about it in my training that wasn't recorded. But it's a really long journey for some of us. Some people can just be out there with it straight away, and for some of us it's a really hard process of self acceptance as well, and people don't recognize that. So I think that's a really tough one. I can understand that for sure. I think basically what you just said is what's been said so many times. You've met one artistic person, You've met one artistic. Person exactly exactly. And of course males are diagnosed more than females are. Yeah, that will add another layer of challenges to the artistic world as well. It's because the medical diagnosis model was created by observing white boys, so it's actually people of color as well have lower diagnoses. And there's a whole other complexity about different communities and backgrounds accepting even the thought of going through a diagnosis. But the medical model is based on white boys, So that's a big part of the problem. I've talked with a lot of females that have been late diagnosed thirties forties, some even in their fifties. It takes a huge leap of faith to get that diagnosis because they've lived their life for so long as they have been What would you tell someone that's considering diagnosis. They've lived their life, they're comfortable with their life, yet they know there's something not quite right. What would you tell them? Because it's a big challenge to find these things and then realize you might have to change a few things to create that better life that you want. I think the very first thing I would say is that I wouldn't tell anybody whether they should or shouldn't, because we spend our lives being told what is appropriate, how we should fit in, what the expectations are on all of those things, and I just feel like actually adding to it a kind of also you must now do this isn't necessarily helpful. Definitely not helpful. I would say that if it's something you want to explore, it's really worth being in contact with other people who have gone through our going through the same being prepared for the challenges as well as the joys of it, because it gives you answers, but it can give you things to grieve about that could have been different. I would always say, if you can have some sort of therapy that I love therapy. I'm not ashamed of it. I love it. It's hard work, but I'm seeing the fruits of that now, and the choice is always yours. You can self diagnose, and particularly you know the autistic and the udio magic community, that is acceptable. Will it make a difference in your life? For the first few years for me, I was like, it's not going to change much because here is the support that I could possibly get. I don't need a diagnosis for anyway here in the UK, So do I want to bother with the process. I'm now going through the process to help me to understand things more now that I've reached a point that I want to learn more of the nuances or understand different things, you know, I wasn't going to go through it just to get the label, as it were, so that the biggest thing I would say is it's your choice. I would gently encourage that it can be freeing and just surviving isn't the way anybody should live. But if that's all you've got in you at the moment, then don't add I haven't bothered to go for an autistic diagnosis to the list of things you beat yourself up with. Yeah. Yeah, it's tough living with it not knowing yet. It's tough to make that decision to get a diagnosis because when you get that diagnosis, it could be freeing, but it also could add a lot of stress because of the unknown. Oh yeah, absolutely. One of the things about autism is we struggle with change. So it's like wa way to kind of dive straight into something you struggle with. But if you're if you're going into that knowing, then the change can be easier. But I really just think about being kind to ourselves, and that's something we're not very good at because we've always, you know, spent so much time trying to fit into whatever box is expected of it. Yeah. Yeah, it's finding that balance so that you can drive in the world, but it's also finding that comfort zone that allows you to accept it and thrive. Yeah yeah, And you know, it's not vastly different to anybody who's doing some self examination, you know, being really honest with themselves. Right, So I sit in my therapy sometimes I'm like, I'm like, gosh, you know, I don't. This is really difficult. This is a really difficult thing to talk about my therapist. It's like, you're like nor point not whatever, one percent of people who actually choose to do the hard work. And not only that, you have turned up week after week for coming up for three years now, whereas other people go cases too hard, down, walk away. So recognize that even choosing to be on the path is huge and actually kind of praise yourself for that a little bit, you know. Yeah, And other people are doing that for other things other than just autism. So with autism, that is you know, that is part of the process. It is part of the process for other self discovery as well, things that anyone wants to work through, any kind of traum or anything you're struggling with. So we're different in terms of the core reason, but we're not so different from anybody else who's trying to better themselves, learn more about themselves, build the life that's best for them to thrive. Absolutely, the most important thing is that you find your comfort zone, as the old saying goes, you find a way to be comfortable in your own skin. Yeah, the most important part is that you take everything that you learn, apply it, find a way to accept it, and then hopefully with all the changes, you move forward with a better life for yourself. Yeah. Absolutely, and see your own value and worth. I think one of the things I first said when I started therapy was I want to actually be able to advolate for myself. And I do now, not all the time, not perfectly, but way more than I used to. I don't even notice I'm doing it, so that's how much the change is happening. But yeah, it's about being comfortable in your own skin, not to the detriment of people around you. But we all have to kind of shuffle a little bit and accept each other, and we have to accept ourselves absolutely. From the time that you started up until now, what are some of the changes that you've seen in yourself? Sitting in it, it feels like forever. But I'm vastly different, vastly vastly different. It's probably even difficult for me to self identify some of those changes because the work that I've done means that those kind of changes are just happening naturally. But like I said, I wouldn't openly talk about autism in the way that I am today on a podcast that's kind of international. I wouldn't have kind of put myself in a position of saying I can actually deliver training on this stuff, you know, Whereas that's what I do now. I talk about it with people and I'm confident that I have the professional knowledge and the you know, the lived experience knowledge combined that I've got something to offer. I didn't used to think I did in that way. I was always kind of the safety of being in a job was this is what you need to do. The difficulty was some of those things really difficult to fulfill because of my autism and my ADHD. Whereas now I'm like, no, I kind of know my staff, I know what I'm doing. I have plenty to learn. It can't be with arrogance, but I'm good in my skin a lot more than I was, way more than I was. That's great to hear that you feel more confident about what you're doing. I walk away from rubbish far quicker than I used to, as well, way quicker because it used to be it must be something I'm doing wrong. Perhaps why I change this about me? I have a really really deep sort of sense of empathy, and I really feel other people's feelings and because of that, I would be more concerned about them than me and did myself damage or I can understand why they've treated me that way because I know what their trauma is making them do those kinds of things. Whereas now I can hold that but still go. But I still deserve respect and that's my boundary. So yeah, that's very different, very. Different, absolutely, and that's a great thing. Another thing that you have to add to that is that everything that you're doing is actually helping someone and your changing lives. That's a huge positive all the way around. I hope so seems to be. You know, I do seem to sort of have positive effect in the places that I go into. That's a very British response, isn't it. Very self deprecating. Yeah, I am making a difference. You know, I'm training people, speaking to people, you know, seeing those light bulb moments, you know, the work I do. Professionals that like, oh my gosh, I understand have to work with your a DIA family much better now. With businesses, there's things, you know, there are very simple changes that can be made that makes things so much easier. To accommodate somebody. That isn't a big deal but makes all the difference. So, yeah, you bring up the workplace, that's another area that needs to be addressed. For sure. Artistic people are either underemployed or unemployed. I think that's great that you're trying to help that out too, because they certainly can contribute to the workforce. Yeah, oh absolutely. The percentages are I can't remember. I did this research the other day for another piece I was doing, but it's something like thirty percent of autistic people are in some form of employment. And even the employment that we're in, it's not necessarily full time. It could be part time, er hours, contracting, all of those different things. So if you are creating an environment where somebody can flourish and thrive, how loyalty is huge? Absolutely? How do people find you if they need your help? I'm on LinkedIn, I have a website. I'm on Facebook, so it's my website is Gabrielarusso dot co dot UK. That's Gabriela ru double s it's the Italian version of the French version. And looking that up everywhere else. Some on Instagram, LinkedIn all those various things and then message me have a chat. There's lots of different ways I can work with people or just connect people. Just have a conversation would be great as well. This has been a great conversation. I've really enjoyed it, so thanks for coming on. It's been fantastic talking to you, Tony. I really really appreciate it as well. It's great opportunity, lovely to meet someone who's advocating for the autistic community. Absolutely, it's been my pleasure. Thanks for taking the time out of your busy schedule to listen to our show today. We hope that you enjoyed it as much as we enjoyed bringing it to you. If you know anyone that would like to tell us their story, send them to tonymantor dot com. Contact then they can give us their information so one day they may be a guest on our show. One more thing we ask tell everyone everywhere about why not me? The world, the conversations we're having, and the inspiration our guests give to everyone everywhere that you are not alone in this world.