Anna Kennedy's Lifeline of Hope in the Autism Community
When Anna Kennedy OBE speaks, you can't help but be moved by the power of a mother's love and the strength it takes to move mountains for her children.
Join us as Anna Kennedy shares her deeply emotional and empowering journey of raising two autistic sons, Patrick and Angelo.
Her candid recollections—from confronting a world that lacked autism awareness to the life-affirming accomplishments of her children—offer a beacon of hope to any parent walking a similar path.
In a conversation that is both eye-opening and heartwarming, we navigate the challenges and triumphs within the autism community.
We discuss the indispensable role of smaller charities that offer a lifeline to families, the critical importance of early intervention, and the nuances that make each autistic individual beautifully unique.
Anna's story embodies the tenacity and advocacy that it takes to find the right support and to stand firm against those who might dismiss or misunderstand the needs of those with autism.
The episode wraps up with a celebration of achievements and the supportive network that exists within the autism community.
We indulge in the success of heartening events such as Autism's Got Talent and the Autism Hero Awards, while also emphasizing the value of shared experiences.
The warmth and encouragement found in these stories shine a light on the significance of understanding, connection, and acceptance, reminding us all that within the intricate tapestry of autism, no one is ever alone.
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The content on Why Not Me: Embracing Autism amd Mental Health Worldwide, including discussions on mental health, autism, and related topics, is provided for informational and entertainment purposes only.
The views and opinions expressed by guests are their own and do not reflect those of the podcast, its hosts, or affiliates.
Why Not Me is not a medical or mental health professional and does not endorse or verify the accuracy, efficacy, safety of any treatments, programs, or advice discussed.
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Why Not Me is not liable for any outcomes, financial or otherwise, resulting from actions taken based on the information provided.
https://tonymantor.com
https://Facebook.com/tonymantor
https://instagram.com/tonymantor
https://twitter.com/tonymantor
https://youtube.com/tonymantormusic
intro/outro music bed written by T. Wild
Why Not Me the World music published by Mantor Music (BMI)
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Welcome to Why Not Me the World? Podcast hosted by Tony Mantor, broadcasting from Music City, USA, Nashville, Tennessee. Join us as our guests tell us their stories. Some will make you laugh, some will make you cry. Real life people who will inspire and show that you are not alone in this world. Hopefully you gain more awareness, acceptance, and a better understanding for autism around the world. Hi, I'm Tony Mantor. Welcome to Why Not Me the World. Today's guest, Anna Kennedy Ope, is from England. She has such a great story to tell. She has two artistic children, she's involved in local charity, she's on the radio. There's just so many things that she does, and I'm just so happy to have her on. So welcome to the show. Well, thank you, Tony, it's my pleasure. I understand you have two artistic children, if you could tell us a little bit about them. Yes, I have two sons, Patrick and Angelo, they now aged thirty three and thirty. At that age when they were born, autism wasn't as prevalent. What led you to believe that they needed to be diagnosed for autism? Okay, So, as I say, I've got two sons, first son, Patrick. I had a difficult pregnancy with Patrick. I had pre clampsia and toxemia, and I had him very early, eleven weeks premiature. Obviously, it was quite stressful at the time because it's your first child and he was in hospital for ten weeks. Wow, that's very tough. We didn't think he was going to make it. He had the last rites. Then he had a blood transfusion, which was the making of him. I always remember he was two pounds when he was born, almost like a small bag of sugar. He was in the incubation, he just he was making strides forward and then he would make strides back, and he was picking up infections. And then he had the blood transfusion. So thank you to whoever gave the blood. That's great. Did that make a big change for him? It really really boosted his immune system and that's when he started to make progress. So I brought him home actually the week he should have been born, in March, which was near my birthday, So a lovely birthday present. Absolutely, that's just so good. So what led you to believe that he might be artistic? Thirst three years of his life he had it was quite difficult, so he seemed to be picking up everything he had sept the same year he had ricketts, he had hooping cough, constantly picking up chest infections, and then again sort of into his third year, started to become a little bit more robust, but very clingy towards me. Because I was in and out hospital over him all the time, and I was the one that was spending the nights with him. I thought, that's why he was so clingy towards me. Well, that makes sense for sure. He went to the new he found that really difficult. He cried every day, kicking and screaming, seemed to get on better with adults rather than children. I've heard that could be a marker. He started at the school and again he was finding that extremely difficult. We were going as a family, if you like, to the hospital because to make sure he's passing his milestones, he's having to have injections because he had rickets, so he's having to have vitamin D injections because he couldn't symnpthesize vitamin D in his blood. That it was just constant going backwards and forwards, backwards and forwards. Then he started at school, and I thought the difficulties he's had because he had a bit of a tough start, but then he started getting bullied at school and had Angelo three years after Patrick was born, so Angela was again passing all the milestones. And then when he got to about three years old, that's when he lost everything. So he lost his speech, had no eye contact whatsoever. I was fixated on wallpaper patterns that we had used to be into, like flowery wall paper. Seems to be quite fixated on the patterns. All of a sudden, he didn't want me to touch him at all. It was just as you can imagine, heartbreaking because you had a child and then and obviously being Italian, I'm a very touchy, feeny person and he didn't want to be touched. So I was finding that quite difficult. So then trying to get Patrick to school, all these changes with Angelo, then after really persevering two and a half three years, going as a family to the therapist as well, with everything going on. Because we'd moved from the Northeast where I used to live, to London, I didn't know anyone, so I felt very very isolated. Did you have anyone that you could talk to at all? Sometimes I remember bringing my mom just sort of crying down the phone, really not saying very much, sure, but it was just I felt I had to release it somewhere. So then after that, the school said that they couldn't meet Patrick or Angelo's needs when he was ready to start nursery and we were going as a family to see a therapist. She couldn't come to a meeting that we were having at the school, so she submitted a report, and in the report after Angelo had been diagnosed at the age of three with autism, because I'd been reading about autism and what it was all about, various different forms that he could take. On the very top of the report it said Patrick was diagnosed with Asperger syndrome in nineteen ninety four. And then I remember the head teacher and the people that were in the room with us together with my husband, said missus Kennedy, why didn't you tell us? And I just said, because I've just found out now the same time as you. Wow, that must have been really tough on you. How did you handle it? I remember couldn't concentrate on the rest of the meeting. I just felt like a rush of blood had gone to my head. And then I was thinking, I have two children who are now autistic, I have no support system. What does this actually mean? Because when Angelo was diagnosed, no one actually sat down with me and said, this is what autism is, this is what we can do. When I started to do a bit of research, I remember there was about seventeen different ways that you could work with children who were autistic, and I thought, how do I know which is the right way forward for both my sons. That's the big question I hear from everyone when they first find out about a child this artistic is what do I do and how do I help them? So? What was your game plan from there? Again, feeling very very isolated. Then I bumped into a parent when I was shopping and she was having a difficult time with the son. I think it was about three or four at the time, and I just sort of recognized the behaviors. So I went up to and I said, can I do anything to help you? I had Patrick and Angelo with me at the time, and then she told me about her son, and that's how we became friends. We felt very isolated because at the time as well, I was told by the local authority of where I lived that my two sons were the only two boys in Hillingdon where I lived, that had autism, which, obviously, later down the line I found out that that was not true, right, so I didn't have a skull for my boys to go to. Wow. So what happened from there? Bumped into other parents and I put an article in the newspaper where I'm still friends with a reporter all those years down the line, and I said, there must be other parents that have children like our children. So then two hundred and seventy five families wrote back to us to say that their children were autistic, or their adults were autistic, or they were in the mental health unit, or whatever it may be. So what happened from there? So we decided to set up a group and we did at the church hall. Okay, it was a Catholic church hall knew where we lived. First of all, it was a small group in the lounge where I lived at home. How did that go? Just people meeting up, having a cup of tea and a chat type of thing. And then we had the hall where we used to meet once in the afternoon once a month, and then once in the evening for people who couldn't get there in the afternoon. So the group quickly grew parents like me, kids out of school, no schools for them to go to, or again, adults that were in mental health unit or they were at home. So then we found out about a school that they were going to knock down and build thirty seven apartments. And when I went to visit it, I didn't actually realize how as it was to where I lived. It was very overgrown because they were gonna knock everything down and build housing. Right, So I went to have a look. Basically found out it was a school that was for children that had physical disabilities. The doors were not wide enough for the wheelchairs to get through, so they decided to knock the building down. And then I thought this would be ideal school for children who were autistic. There's nowhere else for them to go. Wow. So to cut a long story short, we campaigned they've got parents together and they leased the school to us for thirty years. That is just so great. My boys went there and the school's still going. I don't work with the school now, but I was a director for about thirteen years there. Then I decided I wanted to set up the charity because parents are still writing to me as I was all those years ago, trying to get a diagnosis, trying to find the right school. What happens when they get to eighteen? Right? You know there's nothing out there. So decided that I wanted to set up a charity support parents. That's great. Yeah, so that's a little snapshot. Really, there's so much more to it than that. That's just so great how this all fell together for you. So how old are your sons now? Yeah, my eldest son, Patrick's thirty three. He has a full time job. He works at Pinewood Studios. He's enjoying his job. He's been there for five years. He's just moved into his own black just over a year ago. Saying, my youngest son, Angelo is always going to need one to one support the rest of his life. He has minimal verbal skills, has no sense of danger. He's still at home with me, but he goes to the college that we set up all those years ago. It's a vocational college where that he's constantly working on his independent living skills, receiving speech and language therapy and occupational therapy. I'm sixty three now, and I know that I'm not going to be able to keep doing what I'm doing, So I'm sort of thinking about the future, right, Yeah, So I speak to many many parents, whether they've got children or adults, who always think who's going to look after my loved one when I'm the longer around? And petition at the minute where I'm hoping to take it to ten down in the street where I've got nearly sixteen thousand. Signatures, that's outstanding. A lot of the local authorities where I live actually don't know how many parents are actually looking after their sons or daughters at home. So if they don't know, how can we put the right provision in place? Right? What you just brought up is something that comes up in just about every podcast episode I do. Parents are scared to death on what happens to their kids after they're gone. So this program you're working on, now, what does that entail? So it's a petition that I have on at the moment. So basically parents are signing in it, or even artistic adults, you know, because they're worried also when their parents are no longer around. I've spoken to a couple of adults where I say, for example, I'll give you two examples. There's one gentleman he's both his mom and dad died sadly, he could not live in the home where they were living, so he ended up in a tent with his dog and it was freezing cold, and he sent me a message saying that he'd read about me helping this other gentleman in Cornwall there was a similar situation, sleeping on a bench and he just said, I'm freezing cold, I'm in a tent, I'm with a dog. I'm trying to access somewhere for me to live and what have you. So, And I'm not saying that I paid for him to stay in a bed and breakfast, but I just couldn't bear the thought of him because it was so cold when he messaged me with icy cold. So I paid for him to stay in a bed and breakfast something way be worn with the dog and a couple of weeks and then I did a crowdfunder where I asked people I would they like to help, So we managed to raise some funding for him. For a few weeks. I spoke to the crisis center and various other people and now he's living in his own place with his dog. Great story. Do you stay in contact with him. He messages me now and again to let me know how I was getting on, and he said, it wasn't for you, Anna, I wouldn't be around. Now. That's really great that he was able to help him. And there's another gentleman that messaged me and his parents died and then they moved him out of the house, but they moved him fifty miles away from where he lives. Wow, so nowhere near where his friends are wherever. So obviously this caused him a lot of anxiety. And these are the sort of stories that I'm hearing at the moment. And also now because of these uncertain times, the cost cuts, everything that's going on, it seems like people with disabilities are the first to be targeted. You see where I'm coming from. Oh, absolutely, that's something I hear from so many people from all around the world. One of the biggest things I hear from people all around the world is that people tend to, unfortunately fall through the cracks, and because of that, they tend to be forgotten. Yes, that's where we have to get people around the world like yourself and others involved, because the biggest thing I think is the issue is the understanding of artism most definitely. You know, there's a lot of good stuff that's going on out there. The sad thing is that a lot of the smaller charities are the ones that are closing. You know, the person that I speak to who looks after our counts small charge. Everyone thinks we're a big charity, he said, He normally looks after forty roll charities. Right. A quarter of them now have got to close down because they just can't keep up. And that's sad because I think that smaller charities are the backbone of the society. They're the ones that help the grassroots level and family. I agree one hundred percent. Smaller charities are more local community charities. They know the people, They understand the cultures and everything that goes on within their society in their community, and I think that it's just a huge, huge thing that they get supported because ultimately they're the ones that's going to do the most to help people that need the help. Yeah, if your child or your adults just been diagnosed, try and find a local support group where there's families that live close to you, where you don't feel so isolated that you can speak to share information, and they know what you're going through. I always say, there's obviously a lot of positives as well, but there's also a lot of negatives, and that negatives are it's how you've got to navigate the system because it it's just really hard. It can be quite complicated as well. It's definitely not an easy journey. No, it's not. I've always been told with just about everyone that I've talked with, when they first find out that their child is autistic, they just don't know what to do. Yeah, they don't know who to see, they don't know anything really because they've never had to go through that before. Yes, it can be so overwhelming to them because they've got a young child and they want to make sure they do everything to give that child the best possible chance that they can. Yeah, and the earlier you start working with children who are autistic, the better the outcomes. So I've seen that firsthand. The earlier you start working with the children and the right way that's going to work for that child is obviously what works for one child doesn't work for another child. Then they always say, and this is a well known saying, if you've met one autistic person, you've met one autistic person. Yes, I've heard that several times. So your charity is located in London, correct. That's right. My voice, my accent is from the northeast of England because both my husband and I from the Northeast. But my husband came to study at Brunell University in London, Okay, so I followed him. Then we decided to stay here. So we've been here for quite some time now. So we're just on the outskirts of central London. We're sort of being Greater London it's called. So I see where you do a lot of things with your charity. Yeah, I really like what you're doing with your charity. So I have a lot of people that listen to my podcasts that are actually from the UK. So if someone needs some help, what's the first thing that you would tell them? So first of all, I get either a contact via the telephone so I heard it ringing just now, or they'll contact me via the charity website, or they may like for example, just recently, i was shortlisted for Woman of the Year on television and I've received so many messages now from parents that saw me identified with what I was saying. You know, how it was for me. So they contact me and I always say to them, whatever you do, never give up as hard as it is. It's just like usually, which it shouldn't be. The parents shout the loudest, get what they want. In the end, arm yourself with information and if somebody tells, you know, find someone who's going to say yes. Yeah, yeah, that's that's a great, great thing to say. Because people feel overwhelmed and they feel like it's them against the world, and it shouldn't feel that way. The should be a situation of where they look at them and say, Okay, we need to do this, this, this, and they help them and guide them. Yeah, and also make sure that where you do go for help that you know they are known for supporting families, because I'm sad to say that there are a lot of how can I say, with everything going on in the world at the minute, social media, if you contact someone via social media, social media can be a really positive thing, but it also can be a really negative thing. Yes, and there are people out there that want to make money out of families. Yes, you know that are autistic, But how can I say it not in a good way? Or there's a lot of toxic people out there. I'm coming across some now at the moment. For me, I always say there's enough autism to go around for everybody. Very true. It's like, if you don't like what somebody's doing, go to someone who you feel that can support you, that you can identify with. You know, it's just like just be careful because there's a lot of people are out there not for the right reason. Absolutely, And I'm discovering this more and more. I discovered it last week. I'm discovering it again today and many families of contact. May just at a call today from Ireland as well, from a lady that was telling me about what's what's happened to her. It's very very sad because the world is hard enough as it is without people making it harder. It's really sad because you're talking with people, you know, in this particular case, you're talking with people that are having a tough time with their children, adapting, bullying, all these different things, and that's where they need to support and their help, and for some charity or so called charity to go out there and take some money or do this or that, and then ultimately the people that need to help, get pushed aside and don't get any help. That's just that's just not right. No, not at all. And there's a lot of scamming and all sorts going on at the moment. So you just need to be very careful, you know, don't always everybody. Yeah, it's just it's hard. It's hard. But hey, I always go with my gut instincts. I find it serves me. Well yeah, me, me too, me too. So now you've been designated OBE in England, can you tell everybody what that is? And that was in twenty twelve. It's Order of the British Empire and I was recognized by the Majesty the Queen who sadly died and I was given an OBE by the Queen for the work that I've been doing with special educational leeds with the charity. It was a very special occasion. I took my mom and my mother along with me. It was just quite surreal at that time as well. It was a couple of people that I recognized, sort of well known, that were received in a cbe an obe, but I also met so many inspiring people there. Again, as I say, it was quite surreal. In Buckingham Palace, I met the Queen. She was talking to me about my sons, about what I'd achieved, and then I always remember I was there in the morning, driving into Buckingham Palace, and then in the afternoon I went home and not to be the toilet was blocked and I was unblocking the toilet, and I was just thinking, what minute I'm meeting the queen and the next minute I'm doing stuff. Oh, you know, it's just like back on the ground, feet on the ground. It is. This is you know, this is life. It is. And that's the great thing. I can relate to that so much. I've done so many things here in the States with the music business things where I've been around stars and celebrities and everything. Very next day I'm back doing my normal, everyday thing. But that's good because the one good part about that is you get recognized for what you're doing and continue to do yes, and then the next day or the next afternoon or the same afternoon, you're back to feet on the ground doing what you need to do, keeping it real. And that's what it takes. You have to get the recognition for what you're doing, but you also have to take and be able to realize that's something that's special. But now the reason why I got this is helping people and that's what you do. That's great, that's right, And it also it's great, you know, it's lovely to receive these, you know, awards and to have this experience, but it also might be opened a few doors for you that were not opened to you before, right, so you know, to be able to go forward to do whatever it is that you know you're trying to achieve. Absolutely absolutely, so what are some of the things you're hoping to do here in the future with your charity? Here in America, AGT means America's God talent. Over in London it means Autism's got talent. So I think that's a great thing you're doing. What are some of the other things that you do locally? There No Odds's Got Talents. The highlight of the charity. We've been doing it for thirteen years now and if anyone's listening out there, it's open to people in the US as well. We've had people from the US that have performed. So basically, just sending your entry, whether you're a singer, a dancer, a musician, a comedian, a poet, whatever it is that you do, as young as five and as old as one hundred if if you want to be sending your auditions and the closing date is May twenty four, so check out the charity website and you'll see a lot of the performers on there. We're just about to go into do the Autism Hero Awards, where we celebrate people that go the extra miles. It could be a parent, a care a professional, a reporter that writes particularly well, you know, articles about orders and people that support the autom community. So that's something else. I've been doing that for five years. We do the Autism Export Brunel University where parents come along. They can listen to speakers, or they can have advice at the clinics, or my husband can give legal free legal advice, or you can ask advice about behavior management or occupational therapy, or it may be speech and language therapy. And then also we have stands there where parents a lot of them are parents who had to give up their job because of what's been going on with their child. So they've set up a stand where they sell resources. It could be books, it could be FIDGIT toys, it could be whatever sensory blankets. It's just something they've had to do to set up their business so that they can obviously live. But even though then look after some of the dot We do free workshops online. We have an automme consultant poll that does workshops. My husband does legal workshops. We do benefit workshops. So that's something else. We do a Christmas Hatred and ambassador to quite a few charities. So we're having a Christmas Funday where we donate selection chocolates. Select We have Selection boxes in America with lots of different chocolates in a box. Oh, yes, we certainly do. We love them. Yeah, So we give those out for free. And so that's a lovely event that we do. I get involved in with me being patron ambassador to other charities. They asked me to do events for them. I'm ambassador to a lovely charity called Camp Mohawk where they've got this piece of land. It's amazed and it's like an amazing forest trail and they've got all these different activities and families go together with siblings so that they can enjoy something together because sometimes it's difficult to go out as a family when you've got an autistic child or adult and as siblings because it doesn't always accommodate everybody. But Camp Mohawk is amazing place. I've been there quite a few times now and you can see families and they're expanding all the time. Daisy Chain is another charity and ambassadorble in the Northeast that was set up by a parent and mom. Sadly you didn't see it come to Fruition because she died of cancer. But that is just growing and growing and growing. They do so much and that I love going to visit there. Various other charities and so I get invited to do lots of different things. So you know, could you come and speak or recently did a talk for a parent, or could you officially open something or whatever it may be. And I always like to see what's going on as well within the Autumn community. Well keeps you in touch with everything and keeps you abreast of everything that's happening, and with so many people that need help and do contact you. Like you said, everybody's different, everybody has different needs. So if somebody calls you and then you met someone or you know someone that's good that can help them, you can direct them in a place that's going to make their life a little easier, which is the whole part of making this happen. And sometimes just listening to someone where they've tried to speak to other people that you haven't had children or adults who are autistic, and then they talk to you and then they share something with you and I said, oh, that's happened to me, and the goal really and I go yes, And then they think because they think it's it's only them or they're doing something wrong, or but when you know, say yeah, that's happened to me, or I've tried this, how about trying this? And it's just about And sometimes, for example, I've a young man who brings me I'm sort of every couple of weeks. He's autistic, and he just wants to talk to me about trains, like steam trains. That's his passion. So I just listened to him. I don't really say that much. Can He always ask me, is that you anna? I go yes, it is, So then he tells me what he's been up to and they'll go okay, then thank you, al goodbye. When I first started my podcast, I basically told everybody just what you said, this is a platform where people can talk about what they've been through, how they adapted to it, how they change things to make life better for their kids or for themselves if they're autistic. My goal was if listeners could hear this and realize that I've gone through that, and then they all of a sudden, here's something that can make a difference that they have haven't thought of, that can help them, And that's a win, definitely. It's just it's about listening to people, giving them time and sometimes just to get it off your chest, because sometimes they can speak to their family members and they don't really get it and haven't known so many families as well where they've been friends, and then once their kids have been diagnosed, they're no longer friends. Yeah, and that's sad, and I find. That really sad. But hey, there's plenty of people out there that will listen to you. Absolutely. I think Facebook is quite a good four families who were autistic because they can share experiences with other parents. For example, it might be just a really small step for that family, but it's huge. But if they say it to somebody else, they won't really get it. But if you say share it with someone and just say, oh, Johnny went to the toilet today for the first time. You know, he's never done that before. He's ten years old or whatever it is. But that's like a big milestone in that family's you know, like and to somebody else it's just like, so, what, you went to the toilet. I agree one hundred percent. I've talked with so many different people and learned so much and hopefully people are getting a better understanding about what autism is and how to handle it. Is the one thing that I feel that was lacking in autism awareness and acceptance is they left out the word understanding, which is the biggest thing. I think that needs to be done. Definitely, most definitely. And it's also like, don't criticize people if they try various different ways or therapies or whatever it may be, as long as it's not going to harm the child, right. But sometimes some people say, now, you can't do that, and it's just like, you do whatever it is that you want to try with your child as long as it's not invasive. But let people try. They have to try various different things to see what works for that child or for that ad or find out what the triggers are for certain things or whatever it is that you're trying to achieve. It's just like for me, it's just like, please don't cryticalize them. It's as hard enough as it is. They're just trying something that they feel may work for their child, and it's just there's a lot of people that are just very righteous or you shouldn't be doing They just shouldn't be doing that, And it's just like you try. Right exactly. It's a hit and miss. Some work. I don't but until you try something, you don't know if it's going to work or not for your child. Definitely, so and you know your child because you're living with your child twenty four to seven. Obviously, Angela it's difficult because he's got runable verbal skills, so it's a bit of a getting game sometimes. But if you have a child that's very articulate, listen to what they're saying and sometimes you can just unpick what it is that's bothering them and you'll find out what the trend is or whatever it is that's you know, just make little notes and just sit on it seems that he's upset on choosday at six o'clock or at three o'clock or whatever it is, and then you'll find what the trigger is that might be upsetting there or him. There's various different ways of doing things. Are always speaking to other parents. They can suggest uff as well. Yeah, so how do people get in contact with you if they need you in your areas? So we have a charity website and it's open to anyone. So it's www dot Anna Kennedy online dot com. If you've got any useful resources that you feelly might like to share with us, we have a resources page. I'm not precious about, you know. I'll have a look at it and if I think, yeah, that's some good information, now put that on the website. If people want to write articles, I'm quite happy for that. Again, I'll just have a look at it to make sure it's okay, and then I'm happy to put articles on the charity website. Whether you're autistic, whether you're a professional, whether you're a care whether you're a sibling. Nice to hear from siblings as well, you know, because obviously sometimes they feel they have to step back a bit because of their parents having a lot on their plate, as they say, in this country, so I'm always interested to listening to what people have got to say. I had a lady on my podcast about a month or so ago. She wrote a book about living and growing up with her three autistic brothers. There's a lot more than just the autistic people that people have to think about. Yeah, sometimes it's their sisters or brothers that are newer typical that have to deal with it as well. Yeah, most definitely. And it's like myself. You know, my husband's autistic, my two sons are autistic, and I feel as sometimes I felt like it could be quite lonely sometimes to be in a house with autistic people because they've all got their various different interests. Also, I learned that to fight my corner, you know what I mean. Yeah, so to be colared. But it's given me strength that I didn't know I had. It's given me drive that I didn't know I had, given me passion and enthusiasm that I didn't know I had. And as I always say, some days good, some days not so good. Sure, And it's truly amazing what you've done with your charities and with everything that you're doing. This has been a really great conversation. What would you like to leave people with for your final thoughts. Final thoughts is it's a tough journey as a parent or a care and as I always say, speak up, arm yourself with information, put your body armor on when you know if you're fighting for a provision or whatever it may be for your child, don't let it get to you too much because obviously you're dealing with an awful lot of things. And that's my say. Some days good, some days not so good, and never give up. There's always to something. They just fa you'll. Find it exactly exactly well. I really appreciate you coming on. This has been tremendous. Oh, thank you, Tony. Thank you for your time as well, and thank you for speaking on Women's Radio two. Oh yeah, I really enjoyed that and I got a lot of good feedback from. It, and lovely thank you and keep doing what you do all right. Thanks, I appreciate it. Thanks for taking the time out of your busy schedule to listen to our show today. We hope that you enjoyed it as much as we enjoyed bringing it to you. 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